We're back!

I am writing this from our 3rd night in a hospital room in Children's again.  Cailynn had a fever last Monday night so we had to cancel her surgery on Tuesday.  The fever went away for most of Tuesday, but Tuesday night it went up again so Wednesday we came back to ER.  They did not have to do a spinal tap this time because of her age and her history, quite a relief for us!  The blood test came back fine, but they didn't even have to send out the urine before we were pretty sure we were going to be staying.  It was cloudy, like last time, which indicated an infection.  Another IV block was put in as we waited for the urine test to come back.  I had anticipated the likelihood that we would be staying so I packed an overnight bag.


We got up to our closet of a room about 8:30pm at which time Cailynn seemed to be in a lot of pain and crying.  I got her calmed and asleep by 10 pm and had a decent night.  During the morning exam the doctor thought baby's lower abdomen was swollen so ordered an ultrasound to check for a hernia.  Fortunately no hernia!!!

We were supposed to leave for a family vacation to Flordia/ Disney World on Saturday.  I was still hoping that we could make it, even if a couple days late.  But later that day we got the good/ bad news.  Good news - our surgery was reschdeuled for Monday!  Bad news - we will have to miss our vacation.  We were incredibly dissapointed (it would have been Trent's first visit!) but obviously Cailynn's health comes first.  And I don't think Mickey is going anywhere....

Once we got that news, and that we were going to be here til after the surgery, I requested a bigger room!  The urologist ordered a folley catheter to relieve pressure on the uerterocele and in order to keep things clear in her bladder to reduce chance of infection.  Later in the day we got a nice, big room!

Day 2 -
After a night in the big room with the big couch/bed, we got our next batch of good news/ bad news.  The urine cultures had begun to grow, but what there were growing was a bacteria uncommonly found in the urinary tract (Pseudomonas).  So our antibiotics were changed.  But because of the bacteria and because of her age, the antibiotic therapy for her will be 2 weeks of IV antibiotics.  After digesting the idea that we would have to be here for 2 weeks, the doctors started talking about putting a PICC line in Cailynn to replace the IV block.  The IV only lasts an average of 3-4 days.  A PICC line is a very small, flexible tube that they put in her vein and thread to the vena cava.  It is more permanent IV line, so that they don't have to keep poking her and putting in new IVs.

They give her a sedative to put in the PICC line so we were told we couldn't nurse 4 hours prior to the procedure.  I was told to stop nursing at 2pm because the procedure was scheduled for 6pm.  But the IV therapists were called of to a couple different emergencies in the hospital and our procedure was postponed twice before they came in and cancelled it for today and let me feed the baby (almost 6 hours!)

The IV nurse came back tonight and talked to me and plans to have Cailynn first on the list for tomorrow.  Tomorrow's nurse arrives at 9am and she told me we can nurse until then.  Apparently the first nurse had planned on using versa and morphine as a sedative, but the nurse tonight didn't see why they needed the morphine, so we didn't have to be NPO for 4 hours.  That was a relief.

So now its almost 11pm, 2 more hours til her next round of antibiotics.  Praying the IV line she has in now is still good...  then maybe some sleep.  Tomorrow morning we will have the PICC line put in, x-ray to confirm placement, and then maybe take a walk around the hospital since they will let us off the floor.

Good night...