so done with this...

I apoligize for not keeping you up to date.  We came home after our last hospitalization with a PICC line in and directions to administer IV antibiotics.  Sunday 8/15 was our last dose of IV antibiotic and the home care nurse was to come on Monday and remove the PICC line.  Sunday I was looking forward to getting that thing out.  By Monday at our visit to the pediatrician, I had seriously considered asking if we could keep the line in for a few weeks, in case we ended up back in the hospital.  Then they wouldn't have to put in a new IV line.  Call it mother's instinct or a whisper from God, but I listened.

And thankfully so.  We were back in Children's Emergency on Saturday night because of fever.  And no surprise, were admitted for UTI.  We are now up to 3 hospitalizations in her short, 11 week life.  I haven't written because I just don't know what to say anymore.  Same drill really.  IV antibiotics, have to stay until fever is gone for 24 hours and culture has grown.  Someone coming in every other hour to poke or prod or bother Cailynn in some way.  I've gone from being afraid, unsure, overwhelmed at our first stay, to an "old pro" this time.  We've run into doctors and nurses from previous visits that still remember her name.  Not sure if its because its only been 2 weeks since we were here last, or because she is so memorable in her cuteness!


Talked to the uroligist yesterday, and after asking my million questions that all boil down to, "Why does this keep happening?" have come to the realization that we will be back, probably in a couple more weeks, and will keep coming back until she is able to have her "big" surgery to correct her "plumbing."  So more tests will be ordered...

(later......) Just heard from the nurse that we have been scheduled for an MRI at 9pm tonight, so I guess we are not going home today.  She will be sedated and she will need another IV put in because they cannot put the contrast fluid through her PICC line.  She also has to be NPO for 4 hours, so no more breastfeeding after 5pm.  This will be rough as her fussy time is between 7-10pm.  But we will make it through because we have to.  I'm upset she has to have another IV line, I know how much that hurts her, but what can I do???  We just have to endure, deal with whatever comes up, and keep trusting God.  Can't say its as easy as it was at first.  Both Trent and I are getting emotionally worn out over the whole condition.

Thank you for being interested enough in our lives, in her life, to continue to read her blog.  Thank you for your continued prayers.... don't really know what else to say....